I have a disease.
(It sounds dramatic to say, but it’s my reality.)
I
used to not share about this too much.
I
used to not take it too seriously.
I
appreciated a diagnosis. I was relieved to be given a definable reason for the
way I was feeling and looking.
Hypothyroidism and Hashimoto’s Thyroiditis
A quick explanation of Hypothyroidism:
=Underproduction of thyroid hormones. The
thyroid gland is part of the endocrine system that produces hormones that
coordinate many of your body’s activities: they maintain the rate at which your body uses fats and carbohydrates,
help control your body temperature, influence your heart rate, and help
regulate the production of proteins. (Mayo Clinic)
=Since your body’s energy production
requires certain amounts of thyroid hormones, a drop in hormone production
leads to lower energy levels. (WebMD)
A quick definition of Hashimoto’s
Thyroiditis:
=Autoimmune
disorder where the body attacks thyroid tissue, which eventually dies and stops
producing hormones. (WebMD)
Some
of my main symptoms through the years:
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When I was first diagnosed, I thought:
“Hmm. I have to take a pill
a day for the rest of my life. Forever. Not great. But, I gotta do what I gotta
do.”
I
couldn’t truly understand the implications of what I was facing.
Until.
Big
issues arose and crashed into my monotony of daily pill-taking. It has taken me
several years to even reach the point where I am today in resolving the
complications.
And
now, with 7+ years of my diagnosis under my belt, I can recognize pretty
clearly the severity of symptoms when my levels are off. BOOM.
I am in constant a battle with myself:
My desire for
perfection and completion in my days
VS.
My extreme
fatigue and oftentimes despair at my slowness of abilities.
My
forgetfulness and fogginess of thought often result in mounting frustration with
myself and the appearance of being “ditzy” that I often try to laugh off (but
inwardly I loathe).
And
add in 3 children. Boys. 6 and under.
Boys
that are very young and very active and very needy…
(Although, this RARE image below of stillness and peace quiets my soul!) :)
My
energy abilities and mental clarity is very obvious.
And
both are suffering.
Daily life is the struggle.
…Let
alone a hobby or anything to “show” for myself. Boo.
Gardening?
Nope. I wish I could.
Exercise?
Outside the daily running after kids? Ha.
Volunteering?
Not too much.
Cooking
gourmet meals?
Not right now.
Taking
the kids to the pool in the afternoons?
No way.
Scrapbooking,
painting, drawing?
Not in this season...
Carrying
out goals, like work on our basement?
I wish. Someday?
Accomplishing
these kinds of activities don’t even show up on my radar, until I learn of
someone else’s accomplishments, and then I feel less-than.
This
fight is something I’m attempting to be conscious of each day:
The longing (even jealousy) of other’s
natural amounts of energy and motivation and drive.
I
have often thought: The spirit is
willing, but the flesh is weak. Sometime the spirit ain’t even willing.
Then it’s just a losing battle!
I
fake having energy. I pretend I have it. And sometimes that is convincing
enough for my own self. And maybe even you.
Then
I crash, exhausted at home. So worn down and weak and foggy. Yet I DO NOT
want to stop my efforts to be OUT THERE and try.
With
the recent help of a dear friend who is a fellow struggler in this daily
journey, I am learning to:
Try to accept my
limitations.
Try to give myself myself
grace.
Try to give myself freedom
to turn down social opportunities (when I used to try to accept all and do all).
I’ve continued to learn more. From websites, from doctors, from specialists, from fellow thyroid disease sufferers, from a facebook support-and-education group “Thyroid Sexy.” That helps.
(I must acknowledge my amazing family doctor, Dr. Veltri. He listened to me at my very first appointment with him, back in 2007, when I couldn't stop crying, when I felt awful, when I was gaining crazy weight, when I couldn't get pregnant. When I was a MESS. And he immediately took a series of blood tests and provided me with the key to the mess going on inside me. And he has been faithfully dedicated to keeping me healthy and educated and balanced these past years. THANK YOU.)
I
have learned things about myself through the years:
- Writing helps me remember what I hear so I can tangibly recall the words and meanings later.
- Writing helps me process so I can internalize what would otherwise evaporate outside of my memory. (This is why I write down so much in my journal or in notes to myself.) (This is why I can express my thought worlds better in writing that in words aloud.)
But He said to me, "My grace is sufficient for you,
for power is perfected in weakness." Therefore, I will most gladly boast
all the more about my weaknesses, so that Christ's power may reside in me.
(2 Corinthians 12:9)
I
am often emptied.
Yet
needs abound. Responsibilities await.
“Your
emptiness is but the preparation for your being filled,
and your
casting down is but the making ready for lifting up.”
(Charles Spurgeon)
So
please, give me grace (and grace for others and yourself, with visible or invisible chronic conditions).
Grace
for:
- forgetfulness.
- absent-mindedness.
- being slow to connect the dots.
- desiring to be available, but the battle to follow through.
- anxiety to please others, but on a “low tank."
- impatience with declining abilities.
- sometimes being self-focused.
May
I be compassionate to YOUR story and YOUR needs.
May
God fill in the gaps where I am not enough.
When
I am empty, Lord, fill me…
“The Lord
longs to be gracious to you;
He rises to
show you compassion.”
(Isaiah 30:18)
I
desire for results, for an impact.
I
desire to make each day count.
I
love it when my pen flows, when my fingers fly on the keys.
BUT.
It is not about ME.
I
am a fragile-yet-sturdy piece of clay, being shaped and formed and gently
crafted. Or also sometimes felt severely? I am a rock that will soon be revealed as gold.
"But He knows the way I take;
When He has tried me, I shall come forth as gold.”
(Job 23:10)
“How will you
know when the gold is purified?
The refiner
answered, “When I can see My face in it, it is pure.”
(Robert J. Morgan, “The
Promise”)
Emptiness can be beautiful.
Pain can be beautiful.
=
Leads you to recognize your
need for strength.
=
Brings humility and the
deepest grace.
=
Gives the gift of sweetest
appreciation
for the seemingly mundane
and ordinary joys.
You
see,
Some days I feel light and
airy and ready for action.
I APPRECIATE THIS WITH JOY.
But many other days I drag.
I am under my own burden of
expectation.
I struggle against myself,
my abilities, and the world around me that rushes so, that accomplishes much.
That runs on a full fuel tank. That can follow through with intentions.
I
am accepting (or am at least on my way to accepting!) that this is God’s plan
for me.
His
unexpected “gift” in this life of mine:
-To
remind me of my need.
-To
remind me of the joys that ARE the big deals.
(Not the accomplishments of my day. But instead seeing the
underlying blessings that are present, even when my mind is cloudy and weary.)
His gifts are everywhere.
And
maybe, just maybe, my own journey of struggle and ongoing disease will allow me
the opportunity to be a light to another who is on this similar path. That will
make this worth it.
“Every sorrow
we taste will one day prove to be
the best possible thing that could have happened.”
the best possible thing that could have happened.”
(Steve Estes, “When God
Weeps”)
Until then?
One foot in front of the other. One day at a time.
And keep getting back up. Even on the hardest days.
(And when down? Prayer. "It is hard to stumble when you're on your knees.")
Are you with me? With whatever load YOU are carrying. Whether physical or mental or emotional or circumstantial. Join me one minute at at time, and let's not give up hope.
Are you with me? With whatever load YOU are carrying. Whether physical or mental or emotional or circumstantial. Join me one minute at at time, and let's not give up hope.
Blessings as we continue on this journey of life,
Elizabeth
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